August 8, 2011

Love

"There's no other love like the love for a brother.
There's no other love like the love from a brother."

- Astrid Alauda

August 6, 2011

1000 reasons to smile

"When life gives you a hundred reasons to cry, show life that you have a thousand reasons to smile."

- unknown

August 5, 2011

Curious George helper arm

I have been going through ALLLLL the pictures on our computer in the past few days. I'm trying to save them on discs so I can delete most of them off the computer.

Anyways, I came across these cute pictures of Gavin when he was a year old wearing his second prosthetic arm. His Curious George arm, which he rarely wore so I'm glad I have a few pictures.

Here he is at 14 months old driving his ride-on toy on the driveway



When it got colder, we tried putting a mitten over it. Not that it needed a mitten! :P


Here he is at 16 months playing the drums. I used the drums as an incentive for him to want to wear it but it didn't work.




He would always pull it off shortly after. He always wanted to hold the drum stick with his little arm instead! This picture makes me laugh because it pretty much sums up how he felt about this piece of plastic! "Get it off me!"

August 4, 2011

When you smile, the whole world smiles with you

The filmpossible contest is in full swing and there have been lots of new entries submitted in the past few days! If you are going to submit a photo or video, make sure you do it before August 12!

Last year Gavin's video was the only submission of a child with a limb difference. This year there are several and I couldn't be happier about it. When we all come together like this, our message is so much louder and more powerful. We can reach out and educate so many people who may have never met a child with a limb difference before. We are also helping to empower our kids and advocate for them in a really fun way!

I just have to share these awesome photos with you! Remember you can vote on as many entries per day as you want :)

I absolutely LOVE this photo of Jaclyn! She clearly has a great sense of humour :)
When you're smiling...

I also LOVE this beautiful picture of Claire and her new dragonfly friend!
Claire and dragonfly on the beach

Please take a minute to check out these pictures and some of the other inspiring entries. It always makes me smile :)

August 3, 2011

Shifting focus from disability to possibility

Check out this article by Ann Douglas in today's Toronto Star! She interviewed several parents (including me!!) about bringing visibility to disability, tying in to the theme of the filmpossible contest.

Parents shift focus from disability to possibility

I will copy and paste the article just in case the link gets removed eventually.

THE MOTHER OF ALL BABY COLUMNS
Douglas: Parents shift focus from disability to possibility
August 3, 2011


Ann Douglas

When Andrea McDowell was seven months pregnant, the baby she was carrying was diagnosed with dwarfism.

“Initially, I was more or less terrified because no one could explain to me what the diagnosis meant,” the Hamilton mother of one recalls. “And, at this stage, the only thing you know about your kid is what is potentially wrong with them. You don’t yet know who they are as a person.”

Sharon Aschaiek, a Toronto mother of one and disability advocate (autismresolutionontario.com) whose 5-year-old son Jaden was diagnosed with autism at the age of two-and-a-half, remembers the sense of urgency she felt at the time: how her worry about his future made it difficult for her to relax and enjoy her son.

“You can get too caught up in the future. I had to learn to relate to Jaden in the moment — to really be there in the moment, too. Instead of worrying about the future, I had to realize that I was shaping that future right now.”

Once she made that shift in perspective, she experienced less anxiety and more joy. “What you see is what you get with Jaden. His love is unfiltered. I feel lucky to be raising him. He is a really special child.”

Aschaiek was wise to let go of the need to control a situation that is often out of the parent’s control, says Amy Baskin, mother of two, a volunteer and advocate in the special-needs world, and co-author of More Than A Mom: Living a Full and Balanced Life When Your Child Has Special Needs (amybaskin.com).

Advocate, yes, she advises, but don’t let your child’s disability become the focus of your relationship. “Hang out and do the fun kid stuff. Tune into your child and recognize your child’s unique personality, strengths and talents. Create a village around your child. And connect with other parents who are in the same boat.” According to Baskin, you shouldn’t have much difficulty finding other families in a similar situation: One in five families has a child who has special needs.

Tapping into support from others who truly understand can change everything. Peterborough mother of two Linda Viscardis remembers hearing Northwestern University communications professor John McKnight speak 22 years ago about the value that people with disabilities bring to the world. “That speech changed my life,” she recalls.

At the time, Viscardis was hungry for inspiration. Her eldest child, Laura, then 5, had been diagnosed with a chromosomal abnormality during her first year of life — and had almost died on a couple of occasions. The combined pressures of taking Laura to speech, physio and occupational therapy and caring for a new baby had taken a toll on her. She had experienced a major depression the previous year.

What McKnight said changed everything for Linda and for Laura.

“He talked about the importance of creating strong, healthy communities — how every single person in the community has strengths and gifts and the capacity to contribute. We changed the expectations we placed on Laura and that in turn changed the expectations she placed on herself. Today, at age 27, she lives in her own apartment, works part-time and volunteers at a seniors’ residence. She’s more computer literate than I am and she has a large circle of friends. She has surpassed every single expectation we have ever had for her.”

Toronto mother Megan Daley feels that making disabilities more visible is a crucial first step to changing attitudes and expectations. (Her son Gavin’s left arm didn’t fully develop in utero, so his arm ends at the elbow.) To encourage people to focus on what Gavin, now 3, can do rather than what he can’t, Daley is participating in filmpossible (a contest organized by Holland Bloorview Kids Rehabilitation Hospital in Toronto in an effort to “bring visibility to disability”) for the second year in a row. (Note: For information about this year’s filmpossible contest, which now features photography, please visit www.filmpossible.ca.)

Last year’s video — titled His Abilities — focused on a day in the life of Gavin, who was then 2. “We like to show people what he is capable of,” explains Daley. This year’s entry — titled I Can Be Me — features Gavin and his friend Gabby, who has the same type of amputation as Gavin. (The aim of this year’s entry, according to Daley, is to show other young children that kids with amputations are just kids.)

The first few years after a child’s disability is diagnosed are really difficult, say parents who have been there. As time goes on, you are able to focus less on the disability and more on the child.

As Andrea McDowell, whose daughter, Frances, is now 7-1/2 puts it: “Now she’s just Frances and she’s fabulous and we have a wonderful life together.”

Ann Douglas is the author of The Mother of All Pregnancy Books (Wiley Canada, 2nd Canadian Edition, June 2011) www.having-a-baby.com. You can find all of her columns on the Star’s parenting website, parentcentral.ca.

July 28, 2011

3 Years Old

I just wanted to share a few of my favourite pictures from Gavin's birthday.

He was a very happy little boy to wake up on his birthday and find a John Deere tractor (the one he had been asking for incessantly) in the backyard from Gramma and Grampa! He is so proud!


Soon it was time for his party! Auntie Michelle makes his birthday cupcakes every year and they seem to get better every single time!


The birthday boy!


Gavin had a few friends over in the backyard and they played basketball and hockey! It was a great day :)


Look at these two. They were inseparable. Best buds! ♥


Yes, so our little boy is three now. I know everyone talks about "the terrible twos". But so far, I think they might have it wrong and I know a lot of parents who would vouch for me on this one! So far, three is turning out to be a lot more of a challenge!


We love you Gavin! Even when you're grumpy!

July 22, 2011

Lucky Fin Love




I just came across one of many adorable pictures of the two of them together. Gabby and Gavin, that is. They have grown so much in 1 year!! Thanks Annya, for all the awesome pictures we have thanks to your photoshoots!

Which reminded me to spread the word that we entered another entry into Holland Bloorview's filmpossible contest for bringing visibility to disability! It is a really striking photo of their little arms wearing their lucky fin bracelets with pride. Its a close-up that shows their baby or pinky fingers, as they call them. So cute. Love this picture! :)

LUCKY FIN LOVE

We hope you will vote every day because Cisco is donating $1 for every vote (and also we wouldn't complain if we won either.)

You can vote for as many entries per day as you like and there are lots of other great entries too! :)

July 16, 2011

Happy Birthday Gavin!

On this day three years ago, Gavin Michael James was born and our lives were forever changed! ♥

He put me through almost 57 hours of labour (but who's counting?). He was a VERY high-maintenance baby. He was the WORST sleeper. And his tantrums are still long and exhausting, worthy of an Academy Award.

All because he is stubborn like his Mommy! And strong-willed and determined. And smart. He knows what he wants and he knows how to get it. He's emotional. And FULL of energy (a LOT of energy).

And guess what else?

He is the sweetest, most loving boy in the whole world. He is the best big brother ever. He is my best helper. He is caring and sensitive. He is hilarious. And he has a smile that can light up the whole world.

He is an amazing little guy and I could not possibly love him any more than I already do! Until he tells me, "I love you too much sweetheart" and wraps those skinny little arms around me. And then I realize that I love him a little bit more each & every day.

Happy Birthday Gavy! I am so proud of you! Wishing you the best birthday ever!! I love you too much!

July 5, 2011

Jim Abbott quotes

"People will tell you that I overcame obstacles? Maybe. But the truth is I was incredibly blessed in my life. More was given than was ever taken away."


"Some of you may know that my career statistics weren't that great. There were some incredible highlights and some agonizing low lights. The truth is, I won't go to the hall of fame. But if a career can be measured by special moments, lessons learned, and a connection with people then I would stack mine up with oneness. Maybe there is an obligation to share. To try and learn from the experiences life puts us through."

- Jim Abbott, former one handed baseball pitcher, and motivational speaker

If I Knew You and You Knew Me

If I knew you and you knew me --
If both of us could clearly see,
And with an inner sight divine
The meaning of your heart and mine --
I'm sure that we would differ less
And clasp our hands in friendliness;
Our thoughts would pleasantly agree
If I knew you and you knew me.

If I knew you and you knew me,
As each one knows his own self, we
Could look each other in the face
And see therein a truer grace.
Life has so many hidden woes,
So many thorns for every rose;
The "why" of things our hearts would see,
If I knew you and you knew me.

by Nixon Waterman